Motor Neurone Disease

The story so far….

847 people have died from COVID-19 in the last 24 hours

Before the arrival of the Pandemic that is COVID-19, most of the news coverage was related to our exit from the European Union. Great Britain had been part of the union since the early 70s and a democratic decision had been made to leave. It had become a long ponderous process but we were coming to the end of the negotiations. I personally was optimistic about the future of my country. I was hopeful that things might revert back to what I had seen in my youth. It wasn’t all roses but work was plentiful and life, on the whole, was good. We did import some food from the commonwealth but mostly our farmers grew what we needed seasonally and most of our commodities were produced in factories here. We had thriving industries and improving commerce. We were close to being a self-sufficient country.

The welfare state and the NHS were born more or less with me. In my lifetime they have always been there. A trusted cushion that my generation has taken for granted. I had the privilege to spend a large chunk of my working life in the NHS both in a hospital setting and in general practice. After retirement, I had a couple of years of respite before I was thrown into the heartbreak of caring for my youngest son, Adam, who contracted MND in 2011. Adam died on the 20th of February 2016. Adams’s death hit me very hard both mentally and physically. My life was on hold.

Suddenly this crisis happened, it happened all over the world and has made everyone sit up and take notice. As soon as the pandemic started the cracks in the British way of life began to show. The NHS was on its knees after years of cutbacks. Unemployment was rife. Our shops were full but most of the goods were sourced from abroad. When we suddenly needed increased supplies of medical equipment and medicines our government ordered it from abroad. First big mistake.

The country hadn’t had time to put things in place. Promises made by our government about massive improvements to our way of life following the exit from Europe hadn’t even been realised yet. This is a global problem. Each country was having to look after its own people. It seems that the impetus to source what we need has had to come from the people. Manufacturers, engineers, scientists, private labs and so on have stepped up and the government has had to be prompted to take advantage of the many skills that we have available here.

The people of my country have shown that they can adapt and produce the goods needed and adapt quickly. Precious time has been lost and as a result, many lives have been lost. I hope that from here on our government will learn from their mistakes. There is no end in sight as yet but we are nothing if not resilient.

I live in hope that we can eventually recover from this and make the country the exceptional place that it could be. Thriving and productive, self-sufficient, no jobless, no homeless, a good welfare system for sick and vulnerable, free education and health, clean and efficient buildings, good housing with gardens for everyone. A country to be proud of again. It will take a long time and I may not live to see it but we can do it. Our people deserve it.

A vaccine may be a long time coming

Stardust


The subject of Adam’s ashes has reared it’s head again and I am no nearer to deciding what to do about it. Up until today the blue box containing all that remains of my beautiful boy has been sitting in the living room underneath his photograph. However, I am aware that I am not the only person with an interest in what becomes of them. He has three children and their two respective mothers, two brothers and a father, all of whom have genuine rights when it comes to making a decision about this difficult problem. I am his mother, This was his home, Where he is now is virtually the same place where he was set down when I brought him home from the maternity ward in a little blue carry cot. I don’t think I am ready to let him go yet. I still haven’t come to terms with the way he died  and I think that that is the crux of the problem.

Stardust

Fourteen billion years ago the whole thing was begun.
Time itself came into being, the clock began to run.
And in the crucible of space, all there is, was born.
The building blocks of all we know from some galactic storm.
Collapsing stars formed elements, the elements combined
To form the substance of it all, the earth, the trees, mankind!
So look into the midnight sky, creation on parade. . .
For what you see in starlight is the stuff from which we’re made.
For we are in the universe, The universe in us.
The two are indivisible. A thing most beauteous.
So hear the song of nature. The song that all things sing.
For we are truly stardust, everyone and everything.

By John Marsh © May 2015

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Eglu – 13 years on.

The Eglu was the start of a big adventure for me as I ended up with fifty chickens, all bantams, and fifteen ducks, calls and runners. This adventure came to a crashing halt when my son was diagnosed with Motor Neurone Disease. I don’t regret a single minute spent caring for Adam and In fact feel very privileged to have spent that time with him and honoured to have been able to help him through, what was for him, a horrendous time. My new chicken venture is to help me through my grief after losing him in February 2016. Life will never be the same for us without him. However, he left me with three wonderful grandchildren, and they are a lasting legacy for which I am truly grateful. They love the chickens and the Eglu is really safe for them to use.

Today I received a refurbishment kit for the Eglu from Omlet. My Eglu was number seventeen off the production line when Omlet, the company, was born. It was delivered by their own chicken bedecked van and assembled in the garden in August 2004. It came with three large fowl, Araucana, which are blue egg layers. The students who designed and produced the chicken house have come a long way since then. I have bought plastic replacements for the originally wooden perching bars, a new green shade and an all weather transparent full cover for the bad weather to come. Other than that, thirteen years later, it is as good as new.

Well, I am a little disappointed as the replacement perches didn’t fit. They looked lovely too. Strong and easy to clean but just not the right size. However the Eglu is back together and looking safe and warm with the two new covers. The five new chickens look happy. They are all small breeds so have plenty of room and I feel confident that they will be warm and dry this winter.

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Christmas Rose – Helleborus Niger

On Thursday this week I shall be going to the local Lidl store to buy some of these beautiful plants. At six for £7.99 I shall be a happy lady. I have kept back some tête-à-tête so I shall pot them up together. This will be another reminder of Adam as this combination of plants grew along under his bedroom window at the house on the hill. When they were at their best I would take him a photo and the twins would often just pick them as toddlers do and take them in to him. I asked for White Hellebore to be included in Adams funeral flowers and they looked lovely.

Christmas roses have a deep growing root system so the roots should be planted downward rather than spread out below the soil surface and the crown of the plant should be an inch below the soil surface. Apply a layer of mulch around the plant. Every spring remove old, tattered foliage and feed the plants with a balanced water soluble fertiliser. Commonly known as hellebores the Eurasian genus Helleborus consists of approximately 20 species of herbaceous or evergreen perennial flowering plants in the family Ranunculaceae, within which it gave its name to the tribe of Helleboreae. The scientific name Helleborus derives from the Greek.

Update November 2017 – These plants, Helleborus Niger, have paid me back over and over since I bought them as they flowered from November to May. They retain their interest throughout the year. Now its November again and once again their snow white flowers are peeping through to brighten up the Winter days. They are tough little plants with delicate flowers. I have two large containers full of them and one plant in the side garden. I love them and may invest in some coloured varieties this year. As we are expecting some very cold weather I have mulched around them with some compost and sprinkled in a little growmore.

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Adam – Saturday 20th February 2016

My beautiful son, Adam, passed away on Saturday 20th February 2016. We were together when he took his first breath on the third of March 1974 and we were together when he took his last. I was privileged to be able to care for him until the end. He loved life and fought to hold on to it despite the awful suffering. I know he wasn’t ready and would have put up with anything for one more look at his beloved children. I am trying to get back to what’s left of my life as he would and often did tell me to.

Orpington Bantams

I have decided to sell my chickens so that I can be available to spend more time with Adam. My son Sean and his partner Deb are taking the eglu and four of the smaller chickens to live in their garden. I have advertised the three Orpington Bantams for sale and will be advertising the others soon.

Motor Neurone Disease

Did you know that this week is MND National Awareness week. Well my family has certainly been made aware as my youngest son, Adam, has been diagnosed with Motor Neurone Disease.

https://www.mndassociation.org/news_and_events/our_news/mnd_awareness_week_1.html

He and the whole family have gone through a state of shock and grief that has hit us all like a jugernaut. After the first round of gp, consultant, hospital, specialists and awful tests we are now trying to come to terms with the diagnosis and what it will mean. On 31st May we had a family visit from a lovely MND Nurse, Heidi, but since then we have had no contact from any of the care team and remain in a state of limbo.

Adam is bravely continuing to carry on as normal and has made a special effort to take his six year old daughter on days out, seaside holidays and this weekend he, his girlfriend and his daughter are travelling to Cyprus for a week in the sun to make some special memories .

If my weblog has been a bit sparse on the gardening front recently it is because we have all been totally preoccupied with this current situation and my positive and optimistic view on life has taken a bit of a battering.